PWSA (USA) is an organization of families and professionals working together to promote and fund research, provide education, and offer support to enhance the quality of life of those affected by Prader-Willi syndrome.

Información en Español

In the spotlight

  • PWSA (USA Announces Evan Farrar as the permanent Executive Director of the organization.  click here for more details.

  • PWSA ORGANIZATIONS WIN – BECAUSE OF YOUR VOTES!!  Click here for details.  Kristen Hernandez from Colorado won our give away!  Click here for more details.

  • New Clue for Understanding the Hunger of Prader-Willi Syndrome: Research Volunteers are Needed for Further Studies.  Click here for more details.

  • The Annual Membership Meeting for 2010 will be held telephonically on Wednesday, September 1, 2010, at 8:00 p.m., Eastern Standard Time. To join the call, please dial 1-219-509-8222. The Participant Access Code is 692767.

  • Prader-Willi Syndrome Association (USA) and the Foundation for Prader-Willi Research joint board meeting scheduled click here for details.

  • View a PWS special on North Carolina’s NC Now TV, part of UNC-TV, released in August 2010.  Click here.

  • PWSA (USA) Conference 2011 - click here for details!

  • International Prader-Willi Syndrome Organisation (IPWSO) 7th Scientific Conference Program Booklet including abstracts.  MAY 20-21, 2010, TAIPEI, TAIWAN - PDF

  • Prader-Willi syndrome hits the news again!
    -    Rhythmic gymnast Sara Abbott possesses an amazing life story – and a lot of support. Click here to see this video.
    -    Almost 8 years old, Madison has become the poster child for Prader-Willi Syndrome.  Click here to see this great video.

  • Attention all federal employees! Combined Federal Campaign (CFC) included the Prader-Willi Syndrome Association (USA)!  Click here for details.
  • View the entire episode of Extreme Makeover: Home Edition - Click here
  • Rare Diseases Clinical Research Network (RDCRN) and other research projects need you!  Click here and participate!
  • PWSA (USA) Medical Database and Research Update A PowerPoint by Janalee Heinemann & Barb McManus.  Presented at the Prader-Willi Alliance 20th annual conference in New York.  [Click Here]  
  • Hurdle and family embracing their 'treasure'
    PWS national spokesperson, Clint Hurdle, hitting coach for the MLB Texas Rangers, shares about being dad to a child with PWS on Rangers’ website.
  • House passes HR4247 Keeping All Students Safe in School Act.  click here for more information.
  • LPGA (Ladies Professional Golf Association) Tour Player Leta Lindley’s work for PWS is now extending to the White House in support of First Lady Michelle Obama’s national campaign to end childhood obesity. Click here.
  • US House resolution passes recognizing PWS Awareness Month and a US Senator is willing to sponsor similar action, but looking for co-sponsor before introducing it. Click here to read more.
  • NIH awards $117 million for Rare Diseases Clinical Research Network including Prader-Willi syndrome research...  [click here] Participants Wanted!  [click here]
  • Regional Focus and Support Groups in your area. [Click here] to learn more.
  • Front Page News Archive  Items formerly on our front page that cannot be found elsewhere on our site may be kept in a news archive.

If you are in need of help or advice, please call (800) 926-4797 or email national@pwsausa.org.  We are here to help you!

 

 

 


 

   



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